Cranial Stenosis


Cayla had her 2 month check up last Tuesday. She was 11 weeks old that day, but it was the first available appointment. On the Thursday before the check up she had to have skull x-rays. She had some problems at birth and a ct scan had shown 3 places where her skull had not formed. X-rays at 2 days old showed everything to be okay, but the pediatrician wanted a repeat x ray at 2 months. So her big sissy and I took her to get the x-rays. It was funny when the lady said I know she is only 10 weeks old but is there any chance she could be pregnant. Cayla screamed and screamed during the xray. She did not like being held down. I felt really bad for her. But we did it. On Sunday, John called. He had not spoken to Zane is over a month and I was refusing to call him. He told me he did not think Cayla was his so I decided not to call anymore. He did call and ask about the kids and it was Father's Day so I gave in and called him back. He and I spoke for about 15 min. and he spoke to Zane briefly. John was very concerned about Amanda flying alone to California and insisted she get an escort. He was concerned about Cayla's upcoming appt. I was surprised at that since he still said he didn't know if she is his. So on Tuesday I went with the girls to the appointment. I had hoped John's mom could go with me, but she didn't make it. I had been praying the x-rays would show everything was fine. So the doctor came in and said I have the xray results. Her right coronal suture has closed early. There is surgery that can be done but it is not recommended unless parents really feel it necessary. I said should I be worried and he said you can worry about anything you want but I think she is perfect and then he left the room. I almost cried at that point. Then the nurse came in to give her the dreaded shots. I had been telling Cayla the mean lady was going to come in and give her a shot and she started screaming when the nurse walked back in, it was funny like she knew what was coming. She cried and cried after the shots--which I did not watch being given. So I called Carol (my mother in law) and told her about the appointment and that she would have to call John. Well that night John called. I asked if his mom had spoken to him, and he said no. So I had to tell him that his baby girl has a skull problem call Craniosynostosis or Cranial Stenosis. He was concerned. I told him to call the pediatrician and see what he thought about seeing a specialist. John and I talked for about 30 minutes. He sounded much like himself. So he said he would call Thursday night, but he didn't. He called Friday about lawyer stuff, but I missed the call. Over the weekend I had my aunt who is a nurse feel of Cayla's head and she said her soft spot on top is small. She recommended I go ahead and see a specialist. So I tried to call John, but didn't hear back. I went ahead and called the pediatrician and got a referral. Cayla sees a neurosurgeon on July 17. One day before the divorce proceeding. I am hoping John will fly in for the appt. But I seriously doubt it. I think he is just anxious for the divorce to be final. Right now Cayla is my primary concern. As you can see in her pictures that Melissa posted (thanks Sissa)Cayla does not look deformed. She has a slight bulge in her forehead, otherwise she looks normal. I am only concerned that things will get worse. So now I have 3 weeks to wait for another opinion.